Latest Developments

So many people have emailed me wondering how Noel, Neilus and Mom are doing. My husband Noel continues to take 4.5mg LDN nightly and I am happy to report that he has not experienced one brand new symptom since he started taking LDN in September 2002. His PPMS remains in complete remission and he continues to enjoy a full independent life. He is still the sole breadwinner of our family and happier than most people I know. Noel uses a wheelchair when we are out and about but it stays in his car when he gets home because he relies on his cane around the house. Lately Noel has started to experiment with his diet and has discovered that he feels much stronger when he adheres to the best bet diet. He does not stick to the diet religiously as a rule, but when he does, he feels better. Now that we are certain that the progression has stopped we think it might be interesting to discover the benefits of diet and exercise to see if he can gain any more strength back in his legs. Once again .. time will tell. We don't seem to be in a crazy hurry to fully experiment so that must mean that life is pretty good.

The reason we visited Ireland for Christmas was because my Mother's Cancer returned yet again with a vengeance. Despite 4.5mg LDN, her cancer once again became very active in October 2006. It took control of her very quickly. Convinced she was dying, she said all of her farewells. Her scans revealed that her cancer was manifest throughout her skeleton and had spread to the soft tissue but was not detectable in any major organ at the time. To manage her pain, Mom went on morphine. Her Oncologist offered her chemotherapy but Mom didn't want any more chemo. Mentally and physically she could not tolerate any more chemo. Once again we were in dire straits. I contacted Dr. Bihari, Dr. Gluck and Dr. Zagon. In the last chapter of my book "Up the Creek" I wrote that Dr Bihari wanted Mom to try Metenkephalin when her breast cancer spread to her bones. At that time, Mom decided that she would try chemotherapy instead. This time, Mom wanted to try anything except chemotherapy. I cannot thank Dr. Zagon, Dr. Gluck and Dr. Bihari enough for guiding me yet again. Dr Zagon hooked me up with a colleague of his in Israel and Dr Gluck hooked me up with a professor in Chicago. Between everybody we came up with a treatment regime for Mom. On November 9th 2006, Mom started to take Metenkephalin which is also called Opioid Growth Factor (OGF). OGF is the end result of the LDN research to date. With LDN for example, we are increasing the body's own OGF - but there is only so much that can be done. Some cancers don't respond to LDN. The theory is that the administration of exogenous OGF means we are adding far more than her body can ever manufacture. The hope is that such action will treat even the most aggressive cancers.
We sourced the OGF from Israel. Using a diabetic needle my father injects mom twice a day with OGF. She has had no adverse side effects from the shots. She feels good after them. From Israel we order 180mg OGF in 30ml monthly solution. So that means that there is 6mg in one ml. Using a diabetic needle dad subcutaneously injects Mom with 6ml twice daily. That would be 3.6mg OGF twice daily. Initially she also took 200mg noscapine 5 times a day. It could be that the noscapine boosted the OGF effect. We are not sure. We do know that Mom came back from the brink and we enjoyed the best Christmas ever. Her appetite and energy returned and her blood work started to fall into line. She came off morphine and now uses difene to manage her pain. On January 10th Mom stopped taking the noscapine. We are going to monitor her very closely and see if the OGF alone will maintain her. She feels very good, indicating we must be on the right track. Mom has also changed her diet. My father spends most of the day preparing her meals. It takes a lot of work to eat right. She is trying to eat an alkaline diet. This involves lots of fresh raw vegetables and juicing. She is also taking many vitamins and supplements such as acidophillus, cod liver oil, vitamin b, evening primrose, selenium, vitamin c, magnesium, calcium, vitamin e, zinc and lecithin. Her next round of scans are scheduled for March. Please God they will show the shrinkage we all feel is taking place. To try this promising therapy you need a Doctor to agree to the plan. Mom was most fortunate in that regard. She feels very good after the shots so the therapy certainly offers the patient a high quality of life. That is important to me. Time will tell what will happen next but today is a wonderful day. I have learned to live life one day at a time.

It is over a year now since my book Up The Creek With a Paddle was published. Noel continues to thrive. He has not experienced any new symptoms since he started LDN in September 2002. My uncle with Parkinson's Disease also remains stable. Under stress old symptoms flare up, but neither Noel nor Neilus, has progressed. That is the bottom line.

My mom finished all conventional treatment for her bone cancer and is back on LDN. This time she is not using calcium carbonate as the filler. She is taking 4.5mg LDN with lactose filler. It has been theorized that LDN failed her the first time, because the calcium carbonate filler made the drug slow release. Only time will prove the theory one way or another. Please God, Mom will remain as strong as she is today for many years to come.

The first LDN conference was held on June 11th 2005 in NY. I was honored to be invited to speak as the final LDN advocate. To hear my talk click here Mary Bradley 2005 For all other talks click here LDN Conference 2005

The 2nd LDN conference was held in Bethesda MD on April 7th 2006. I also spoke there as did my brother Dr Phil Boyle who is now having mind blowing results in Ireland with his patients on LDN. To hear and read about the details of the conference, click here LDN Conference 2006

The most exciting news to date is that the first scientific results for LDN have finally been published. Dr Jill Smith from Penn State university followed through with the LDN trial and has received further funding to fully evaluate the positive effect LDN has on active Crohns Disease. To read more click LDN Latest News

I would especially like to thank Dr Skip and his wife Cyndi and their son Adam for their altruistic efforts in spreading the LDN word. For information on the first LDN DVD compiled by the Lenz family which will help many people persuade their doctor to give LDN a try, click here Skips Pharmacy.

I speak about LDN on every opportunity and never refuse an invite to share my story. I have spoken at many MS meetings. I feel we have come a long, long way. I will be in Ireland for two weeks in July 2006 where I will once again try to get on as many airwaves as possible to keep the LDN word spreading.

Sincere thanks to everyone I have met on this journey for all of your encouraging words of support. Book proceeds have so far been spent on buying more books to keep the LDN word spreading.